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Rare disease present in UAE, Cleveland doctors worried

Multi-specialty hospital doctors are worried with the increase in the number of patients reporting rare disease.

Doctors are investigating whether the incidence of Achalasia is higher in the UAE than the global average, following an increase in the number of reported cases.

In a statement sent on the 9th of November, Cleveland Clinic Abu Dhabi announced that it has seen a marked increase in the number of patients with the condition since they started offering a non-invasive procedure to treat it.

Achalasia occurs when nerves in the esophagus, the tube that connects the mouth to the stomach, become damaged. As a result, the esophagus loses the ability to squeeze food down, and the muscular valve between the esophagus and stomach doesn’t fully relax, making it difficult for food to pass into the stomach.

It has been reported that out of the 11 patients treated by the Cleveland doctors, 9 are Emiratis. The patients underwent a non-invasive endoscopic procedure known as POEM, which uses an endoscope or flexible tube to examine the surface of the esophagus and make a cut in the outer muscle of the esophagus in order to relax it.

Although the rare condition affects less than 1% of the people and the POEM procedure is not compatible for everyone. Although the prior mentioned facts is not true in the case of those in the Emirates.

“For the size of the population, the number seems high in the UAE,” said Dr Matthew Kroh, chief of the Digestive Disease Institute at Cleveland Clinic Abu Dhabi.

“I don’t think anyone truly knows how high the incidence of achalasia is here. I think that’s true for many diseases, especially the rare ones. We’re looking at the potential for hospitals to pool their research on the issue to fully understand how widespread the condition is,” he added.

The aim is to find out whether the incidence of achalasia is higher in the UAE than the global average.

Currently there are only a select number of centers in the United States, Asia and Europe offering this less-invasive POEM approach to treating swallowing disorders. The technique originated in Japan and it has been performed in the United States for the past few years.

“Now that we’ve started to do these types of procedures, patients are seeking out the therapy because they (earlier) didn’t realize it existed … Knowing that these procedures are now available in the country and that people no longer have to travel abroad is starting to bring more people here, which is providing a more comprehensive picture of the disease,” Dr Kroh said.

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